Found this YT video yesterday! Elongates my disability-yeah mood at the moment! 😂 Always glad when I come across people with similar expectations… NOT that I want anyone to be sick…
Sick people Do’s and DON’Ts:
1. Don’t stare.
2. If you’re ever unsure if you should ask… probably better to not.
3. Avoid unsolicited advice.
4. Don’t remark on appropriates.
5. Don’t say things with your eyes
6. Just listen.
7. Let them be mad 😡 .
8. “How can I help?”
9. Avoid “should” statements
10. Be understanding
Note: These “rules “ are my recommendations. I am not absolute.
Note: Everyone reacts differently! Just be courtious, it’s all I can suggest in GENERAL
So, in order to get to this video, watched a different video first that linked me here. BUT I FOUnD IT! 👏🏽
Bit of a chunker video (about 3:38) but so grateful this was addressed! One of the main reasons I got into reading romance is that wearing my headphones 🎧 and doing something ALONE is nice and my experience with romance book commentary has been awesome!
Really enjoyed hearing similar but different diagnoses stories! Thanks for sharing! Know it’s personal but a common thread Ive seen is self-advocacy and self-education…Both are SO important
So my whole dive is partly due to
https://youtu.be/RWqX690Z09k by @peacelovebooksxo. After watching that video, I was so hyped! It also links the Bookish Sick Chicks Chat 👏🏽 My introduction with the romance booktube community was partly influenced by @peacelovebooksxo 👏🏽
Apologies this post is a little all over the place! 🙏🏾 From now on, my reaction to the chat 🙌🏽 There were tears 😭 Felt like I was reliving the experience (in a cathartic way…)
A common theme I see is self-advocacy and self-education (hi google! 😂) so for providers, please recognize your unique position 🙏🏾 As someone with doctor, nurse, therapy friends… It’s no one’s fault, it’s life! This is someone’s life, it’s not a game!
All I’ve had until the strokes were migraines (with aura, vomiting) since 7th grade. Had my first migraine at the mall… Threw up in the food court… As I got older, I would still get migraines… When that happened, I had to shut down… I would regularly go to my best friend. To lie down, throw up, and wait for the migraine to pass… I wouldn’t drive until it was gone…
My migraines usually would resolve after throwing up. As I got older, that was no longer true… Keep in mind my memory is foggy after the summer of 2018… Remember coming home. Don’t remember walking into a wall…
Went back to Boston, going to work as a cardiac surgery RN. Don’t remember much besides going to work, being tired, and snow ⛄️
As I watch the video I wrote this…
Granted its hole-y, but leading up to November 27,2017, I felt unsteady. It felt like I was going to fall… Stayed in my room, called off work… The day of the stroke, remember crawling from my bathroom to my room… My friend found me… She asked me if I could walk.. She called the ambulance and I went to the hospital… I had a stroke… Did a stint in the Neuro ICU, ran A LOT of tests because we still didn’t know why I had a stroke… Come to find out, I’m hyper-colagable. That means I form blood clots easily.
A stroke is the disruption of blood flow to the brain. People usually have 1) a blood clot or 2) a brain bleed.
With illness, there’s still some humor… 😂 The chat did have LOL moments. I, personally, like to joke (especially on myself) I think it just depends on the time, place, audience. For me, I try to remember people aren’t 🤞🏽 malicious…
I had my stroke November 27. 2017. That day is pretty foggy 🌫 can’t imagine what it was like for my friends and family… Im sorry for the position i put everyone in! 🙏🏾
Something I really wondered about was maintaining my privacy yet being transparent…
Social anxiety is real…Get anious when eating in front of anyone… I hate chocking! Dread coughing even…
Being sick, gratefulness is KEY 🔑 Just recognizes the privalege to be alive, thankful to everyone who loves you, being to do whatever you can… it helps tons because dark days are gonna come… the anger is real… my old therapist told me “It’s okay to be mad” ❤️ soo true…
Audiobooks are a godsend! Really enables me to read (more like listen 🎧) Something I heard really resonated with me… “shut your ablist mouth!” 😂
The genetic component of my hyper-colagibilty was my #1 concern… Wouldn’t want this to happen to anyone… I’m prone to miscarrages… If I wver were to become pregnant, it would be high risk… Fortunately, I’ve accepted that…