It has been brought to my attention, not everyone reads (😭) due to lack of time or interest… Hopefully 🙏🏾🤞🏽 my bookish content just puts it out there! These videos are, in no way, a dictation of any sort… merely a suggestion 😂
This live in particular are with some of my YT resources into the booktube world! I owe them a lot, whether or not they know me… I find it awesome they provide this space!
This live, in particular, doesn’t talk about the book too much… you are NOT at risk for spoilers!
Actually, I watched this live while attending another zoom call too! Generally, I love their book commentary! Glad for the chance to interact with them!
Note: Trying to bundle lives with book reviews. The published summary is off Amazon, eventually I’d like to write it!
Found this YT video yesterday! Elongates my disability-yeah mood at the moment! 😂 Always glad when I come across people with similar expectations… NOT that I want anyone to be sick…
Sick people Do’s and DON’Ts:
1. Don’t stare.
2. If you’re ever unsure if you should ask… probably better to not.
3. Avoid unsolicited advice.
4. Don’t remark on appropriates.
5. Don’t say things with your eyes
6. Just listen.
7. Let them be mad 😡 .
8. “How can I help?”
9. Avoid “should” statements
10. Be understanding
Note: These “rules “ are my recommendations. I am not absolute.
Note: Everyone reacts differently! Just be courtious, it’s all I can suggest in GENERAL
So, in order to get to this video, watched a different video first that linked me here. BUT I FOUnD IT! 👏🏽
Bit of a chunker video (about 3:38) but so grateful this was addressed! One of the main reasons I got into reading romance is that wearing my headphones 🎧 and doing something ALONE is nice and my experience with romance book commentary has been awesome!
Really enjoyed hearing similar but different diagnoses stories! Thanks for sharing! Know it’s personal but a common thread Ive seen is self-advocacy and self-education…Both are SO important
So my whole dive is partly due to
https://youtu.be/RWqX690Z09k by @peacelovebooksxo. After watching that video, I was so hyped! It also links the Bookish Sick Chicks Chat 👏🏽 My introduction with the romance booktube community was partly influenced by @peacelovebooksxo 👏🏽
Apologies this post is a little all over the place! 🙏🏾 From now on, my reaction to the chat 🙌🏽 There were tears 😭 Felt like I was reliving the experience (in a cathartic way…)
A common theme I see is self-advocacy and self-education (hi google! 😂) so for providers, please recognize your unique position 🙏🏾 As someone with doctor, nurse, therapy friends… It’s no one’s fault, it’s life! This is someone’s life, it’s not a game!
All I’ve had until the strokes were migraines (with aura, vomiting) since 7th grade. Had my first migraine at the mall… Threw up in the food court… As I got older, I would still get migraines… When that happened, I had to shut down… I would regularly go to my best friend. To lie down, throw up, and wait for the migraine to pass… I wouldn’t drive until it was gone…
My migraines usually would resolve after throwing up. As I got older, that was no longer true… Keep in mind my memory is foggy after the summer of 2018… Remember coming home. Don’t remember walking into a wall…
Went back to Boston, going to work as a cardiac surgery RN. Don’t remember much besides going to work, being tired, and snow ⛄️
As I watch the video I wrote this…
Granted its hole-y, but leading up to November 27,2017, I felt unsteady. It felt like I was going to fall… Stayed in my room, called off work… The day of the stroke, remember crawling from my bathroom to my room… My friend found me… She asked me if I could walk.. She called the ambulance and I went to the hospital… I had a stroke… Did a stint in the Neuro ICU, ran A LOT of tests because we still didn’t know why I had a stroke… Come to find out, I’m hyper-colagable. That means I form blood clots easily.
A stroke is the disruption of blood flow to the brain. People usually have 1) a blood clot or 2) a brain bleed.
With illness, there’s still some humor… 😂 The chat did have LOL moments. I, personally, like to joke (especially on myself) I think it just depends on the time, place, audience. For me, I try to remember people aren’t 🤞🏽 malicious…
I had my stroke November 27. 2017. That day is pretty foggy 🌫 can’t imagine what it was like for my friends and family… Im sorry for the position i put everyone in! 🙏🏾
Something I really wondered about was maintaining my privacy yet being transparent…
Social anxiety is real…Get anious when eating in front of anyone… I hate chocking! Dread coughing even…
Being sick, gratefulness is KEY 🔑 Just recognizes the privalege to be alive, thankful to everyone who loves you, being to do whatever you can… it helps tons because dark days are gonna come… the anger is real… my old therapist told me “It’s okay to be mad” ❤️ soo true…
Audiobooks are a godsend! Really enables me to read (more like listen 🎧) Something I heard really resonated with me… “shut your ablist mouth!” 😂
The genetic component of my hyper-colagibilty was my #1 concern… Wouldn’t want this to happen to anyone… I’m prone to miscarrages… If I wver were to become pregnant, it would be high risk… Fortunately, I’ve accepted that…
Joined on 3/2/21. Facilitators and group were very nice and welcoming, excited to join the club 👏🏽 Have previously read the prequel, My Darling Duke, so I thought it’d be easy to slide in… Boy was I wrong…
Day 2 (Wednesday) Chapters 10-15.
Thought it’d be a piece of cake being a re-read and having reading notes. Initially planned to read over my notes and see which comments correspond to which chapters. But I accidentally erased them…
Back to chapter 1. I planned to read to chapter 15. Before I commented I’d look over the nice chapter summaries on our group thread, kindly provided by one of the facilitators.
Encouraging messages on my thread from my fellow members! 👏🏽 Still 3 chapters to reach daily goals to keep up with the read-along, but determined to participate tomorrow 😁
Day 4 (Thursday) Chapters 15-20
Finally all caught up! 🤗 Feel I can finally join the conversation BUT had to premise that I was unfortunately behind on the thread. Felt good to post 👍🏽 Finished the book! Rated it the same as the first time BUT the book club did help me better understand an aspect of the plot! 😂
MED scare! 😱 Ran out of Xarelto… For anyone with experience with strokes, Xarelto is a blood thinner. It’s meant to thin my blood so a clot doesn’t form. I am hypercoagulable, meaning my blood spontaneously forms clots. I took a 15 mg tablet, usually I take 10 mg. A common side effect is bleeding 🩸, on 20 and 15 mg my nose would bleed. Fortunately, we found one. Not going to lie, the thought is scary. I’m on Xarelto for life.
Day 5 (Friday) Chapters 21 – Epilogue
I woke up to a nice suprise 😄 My godmother and goddaughter came over 😄 Then for other news…Caught up on thread. Find it’s easier to reply as comments come in. The comments by the book club help to better illustrate aspects of the plot. Enjoyed reading our thread! 👏🏽 it had great discussion! 🤗
Watched the club’s IG live with the facilitators! Enjoyed it ❤️ Helps connect with its members and sheds light on the plot 👏🏽 Also, nice to feel more familiar 😄 Marked the end of the read-along for me 🤗
My sister kindly picked up my new prescription of Xarelto today 🤗
Disclaimer: I would NEVER claim to know everything about being disabled! This is just what I do/pertinent to me…
Suggestions and recommendations welcome!
I wanted to dedicate part of my blog to the DIFFERENTLY ABLED 😄 It can be frustrating to constantly have to adapt… From my experience, I use these modifications/life hacks… Always open to yours too!
Must haves
Wireless keyboard
Wireless mouse 🐁
Have some content on my old YT channel, but I stopped since editing was difficult… I wanted to focus on what I can do on my own! 🤗
Reads aloud what’s on the screen 📺 VS highlight and read what I want to be read. Have both, read aloud on my computer 👩💻, highlight and read on my phone 📱
🙋♀️! My name is Precious! aka @listenwithprecious on IG & @precious’moments on yt 🤗 I am a Filipino-American 🇺🇸 stroke survivor 👏🏽👏🏽 UC Berkeley alum UNH alum RN ❤️ HR 🎧 audio listener! 👩🦽 I’ve only joined the book community this year (after watching Bridgerton on Netflix 😂😍)
Part of why I’m doing this blog is to chronicle my reading journey thru Romance-land! So I’d just like to say thank you 🙏🏾 for joining me!
Love Precious
P.S. Decided to blog since I’ve been reading a crazy amount, and I have thoughts… (I’ve got reading notes… 😂) why not keep myself more accountable? 😂 I just find reading belps my mood🤷🏽♀️ and gives me something to do 😂
So buckle up (click it or ticket 😂) and enjoy the ride!
Listen With 🎧 Precious 